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Case : Information disclosure to the relative A certain country's Muscular Dystrophy Association is considering their policy on the propriety of the preimplantation genetic diagnosis of severe dystrophy. Besides, they are considering the scope of the confidentiality when the mother is diagnosed as a carrier of severe dystrophy. Does only the mother have the right to control the information because it is her personal information, or do her close relatives also have a right to share the information based on the "necessity of knowing" to consider their family plan because the genetic information is shared by relatives?
Questions 01. Give some examples of rule or law related to privacy and confidentiality in medicine in your country or hospital.
Q2- If a boy of a couple is suffered from the severe dystrophy and his mother is diagnosed as an asymptomatic carrier by the genetic test, do sisters of her have right to know that fact?
Q3. What should be done if the mother did not want to disclosure this information even to her sister?
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