Reference no: EM132629085

CASE STUDY: #1

Theresa Ann Campo Pearson, an infant known to the public as " Baby Theresa," was born in Florida in 1992. Baby Theresa had anencephaly, one of the worst genetic disorder. Anencephalic infants are sometimes referred to as "babies without brains," and this gives roughly the right picture, but it is not quite accurate. Important parts of the brain - the cerebrum and cerebellum - are missing, as is the top of the skull. There is, however, as brain stem, and so autonomic functions such as breathing and heartbeat are possible. In the United States, most cases of anencephaly are detected during the pregnancy, and the fetuses are usually aborted. Of those not aborted, half are stillborn. About 350 are born alive each year, and they usually die within days.

Baby Theresa's story is remarkable only because her parents made an unusual request. Knowing that their baby would die soon and could never be conscious, Theresa's parents volunteered her organs for transplant. They thought her kidneys, liver, heart, lungs, and eyes should go to other children who could benefit from them. Her physicians agreed. Thousands of infants need transplants each year, and there are never enough organs available. But the organs were not taken, because Florida law forbids the removal of organs until the donor is dead. By the time Baby Theresa died, nine days later, it was too late for the children - her organs had deteriorated too much to be harvested and transplanted.

QUESTIONS:

1. What is the ethical problem in the case?

2. What are the road blocks in making a good decision in the case?