Discuss what ethical issues

Reference no: EM133400476

Question: In 1989, researchers from Arizona State University (ASU) embarked on a research partnership called the Diabetes Project with the Havasupai Tribe, a community with high rates of Type II Diabetes living in a remote part of the Grand Canyon. The Diabetes Project with the Havasupai included health education, collecting and testing of blood samples, and genetic association testing to search for links between genes and diabetes risk. After several years of trying, the researchers were not successful in finding a genetic link to Type II Diabetes. They then used the blood samples containing DNA for other unrelated studies such as studies on schizophrenia, migration, and inbreeding, all of which are taboo topics for the Havasupai. Carletta Tilousi, a member of the Havasupai tribe and a participant in the Diabetes Project, attended a lecture at ASU in March 2003 where she learned the samples were used for the later studies without her consent or the consent of other tribal members (Rubin, 2004).

discuss what ethical issues (specifically relating to informed consent) this case presents?

Reference no: EM133400476

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